G is learning how to reach for his toys. He progresses every day. It's neat to watch him figure out how to coordinate his arms to aim for the target. Right now, he has about as much success as a preteen playing the claw machine. He touches his prize most of the time, but only occasionally manages to get a good grasp on it.
There aren't many other baby updates, unless you want to hear about his napping and pooping habits.
Last night, we met with a mother whose son has had operations performed by the surgeon on G's case. She shared a lot of useful information, and helped to prepare us for the tough stuff. We are so fortune that there is a community of heart families in town who are willing to share their experiences. She showed us photos of the OR and the heart lung machine (which acts as the baby's heart and lungs so that his heart can be stopped during surgery ) - which is way bigger than I expected. The surgeon, she told us, really cares about his patients, and has been known to snuggle and play with the babies. On top of that, he is a brilliant surgeon. Good news.
We are booked into our accommodation for the operation and recovery period. The costs are covered by the BC Family Residence Program and Variety. Have I mentioned that I am so happy that we live here in BC?
On Monday, we will go in for a weight check and a visit with the pediatrician. I will have more to report on the baby's condition after that appointment. The nurse clinician will also offer some photos of other babies who are recovering from open heart surgery, tubes, monitors, and all. Hopefully, these images will help us to prepare for that part of the journey.
We are so fortunate to have such a strong support network here. Our families have been helping us with errands and meals, and the nurse in charge of our case answers my calls and emails, and answers questions so thoroughly.
So now, two weeks after the diagnosis, the road ahead seems more manageable. It isn't the path we had planned to take, but there is plenty of joy to find along the way.
On Monday, we will go in for a weight check and a visit with the pediatrician. I will have more to report on the baby's condition after that appointment. The nurse clinician will also offer some photos of other babies who are recovering from open heart surgery, tubes, monitors, and all. Hopefully, these images will help us to prepare for that part of the journey.
We are so fortunate to have such a strong support network here. Our families have been helping us with errands and meals, and the nurse in charge of our case answers my calls and emails, and answers questions so thoroughly.
So now, two weeks after the diagnosis, the road ahead seems more manageable. It isn't the path we had planned to take, but there is plenty of joy to find along the way.
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