Today we went for a check up at the hospital. The baby's growth has slowed slightly, but is still within the range of a normal baby, albeit a little on the lower side of normal. For now, his weight is not a concern.
His resting oxygen saturation is in the mid to high 80s. Last visit, it was in the mid 90's. This is not great, but the clinician didn't send us home with an oxygen meter, so it's not too bad either. It probably doesn't help that G was a little agitated, even in his "resting" state.
The biggest concern was the baby's labored breathing. G is working hard to breathe, even at rest. For now, we are keeping an eye on it. If things get worse, he will be prescribed medicine. That should buy us some time for G to grow more before his surgery.
Since this is our first baby, it can be difficult to differentiate between his normal state and a healthy baby's version of normal. We are also in denial about how sick he is. We just see our perfect son with big grins and lots of wiggles and a love of the colour orange. I expect the doctors to tell us that he is big and strong and that we have nothing to worry about. How disappointing when they report that, no, he is not OK. Parents have a habit of thinking their kids are the best behaved, or the smartest, or the kindest. They sometimes don't believe that their child could be acting out, or struggling, or bullying. This is our version. We are blind to his illness. What a big contrast with the period before diagnosis, when I was constantly convinced that something was wrong.
Luckily, we have a team who can look at the case objectively and recommend treatment.
Our next check up is in 2 1/2 weeks. Until then, we play and learn and nap. And survive the heat.
No comments:
Post a Comment